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Pheochromocytoma is most commonly seen in individuals aged 20-50 years. Some patients, sufferers and victims, never find it the adrenal pheochromocytoma nickname is the autospy tumor (for obvious reasons). A scan of my abdomen was ordered to get a better view of the tumor. People with pheochromocytomas may also experience paroxysmal attacks, which are chronic episodes of high blood pressure that often lead to headaches, irregular heartbeats (palpitations) and excessive sweating (diaphoresis). Racing heart (tachycardia and palpitations), Carbohydrate intolerance or overt new onset diabetes mellitus, Orthostatic hypotension in untreated state (get faint when you stand up), Unanticipated prominent changes in BP (up or down) in response to drugs or diagnostic manipulations. Surgery is the main form of treatment for pheochromocytoma. Orthostatic hypotension (medical term for that your blood pressure drops when you stand up; often causing dizziness) is an important manifestation of pheochromocytomas and paragangliomas. xo Maggie, Hi there I am Maggie. 131I-MIBG is a radioactive substance infusion that collects in certain kinds of tumor cells, killing them with the radiation that it gives off. Cookie information is stored in your browser and performs functions such as recognizing you when you return to our website and helping our team to understand which sections of the website you find most interesting and useful. Mayo Clinic; 2020. Signs and symptoms of Pheochromocytoma and Paraganglioma. Many patients report that exercise may provoke pheochromocytoma "surges". going to the bathroom). I have kids. These resources may also be able to point you in a direction where lack of insurance wont prevent you from getting the tests you need to find answers. Im assuming thats what you meant by urine tests but just want to confirm. Among the 4 MRIs that I had undergone, {head, neck, chest} the one of my Abdomen revealed the 20 MM pheo on my right adrenal gland. Maggie, Hi. Pheochromocytoma is typically associated with a symptom triad of headache, palpitations, and diaphoresis. Answer (1 of 11): Get to your doctor quickly. Would this diagnosis be a solution or would it mean I was going to suffer for the rest of my life? It puts a knot in my stomach to experience first hand the commonality for women often being dismissed in the doctors office for these pheochromocytoma symptoms (or any other mysterious symptoms!) Four hours later I had my husband take me to the ER where another hour passed before they were able to stop it with medication.